October 16, 2009

No News

*She has received a round of blood and is doing much better with her oxygen levels.*

We really don't have any news yet on what to expect of the LSV found in SGP's brain. The Pediatric Neurologist that our doc is trying to get in touch with happens to be in Norway, and she's not answering her emails...go figure.

But our doc did tell me this...(and some of it probably got lost in translation, so if you know anything about this, and I'm saying this wrong, please forgive me)...

She said that based on the report of the brain scan, it does not look like a congenital infection or calcification (both of which would mean developmental disabilities), but it looks more like a benign infiltration of white blood cells that are making the vessels in her brain appear more prominent. We will follow up with the Pediatric Neurologist (who's in Norway) as soon as she gets back, and definitely before we leave to go home (still no word on when that will be).

All in all she tried to assure me not to worry about it (WAY easier said than done), and that it's not something that's causing her problems since she's not symptomatic in any way that would indicate a bigger issue.

But we're not done praying. I don't think I will be completely satisfied about it until we either hear from the Pediatric Neurologist, or see a scan with no appearance of LSV. And even then I'm not sure that fear will ever go away.

It's just the mom in me.

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